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Joseph Ashford Ellis Bringing Awareness to EB

As beautiful as the insect it’s named after, The Butterfly Foundation, founded by Joseph Ashford Ellis of Bournemouth, aims to help a special group of individuals: children diagnosed with EB. The foundation offers numerous types of support for EB patients and their families. If you are unfamiliar with this medical condition, you are not alone. Many people have never heard of EB before now.

What is EB?

Epidermolysis bullosa (EB) is a genetic condition that causes fragile skin which results in disfigurement to sufferers. It can be diagnosed at birth. This condition oftentimes leaves sufferers with butterfly-like skin. Joseph Ashford Ellis started the foundation after hearing the story of Mason White, a young boy diagnosed with EB.

Mason’s skin is so fragile, he is required to wear bandages at all times. He sleeps on sheepskin bedding and wears special clothing that helps protect his skin. Living with the condition is a nightmare for those suffering.

Due to its rarity, EB often goes unnoticed by the majority of people. That’s yet another reason Ellis chose to create the foundation: to build awareness. If more people know about EB, the more support sufferers receive.

K4 Global Founder

Joseph Ashford Ellis also founded and owns K4 Global, a consultancy company. The agency opened its doors in Bournemouth in 2014 and has grown substantially over the years. As an experienced marketer, Ellis understands how to get messages out to an interested audience. This has allowed him to handle several leadership and executive roles at various firms.

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